Help us advocate for better myeloma treatment.
Keep us living campaign
In September Myeloma New Zealand put a submission in to Pharmac in support of funding for daratumumab and other treatments. The submission can be found here.
There have been no new myeloma treatments funded for eight years and New Zealand patients desperately need more options. We’re asking you to take one small step to help us with our campaign. See below for how you can help.
Our key messages for the need for funding better treatments can be downloaded here and are at the bottom of this page.
Campaign progress to date
We need your help – one small step each, one giant voice together
The next two months are key for our campaign to get daratumumab funded. There are some key meetings and decisions coming up at Pharmac, and we need Pharmac and the government to hear our voices.
We’re asking everyone to take one small step before Christmas so that our efforts together will be one giant voice.
There are three templates you can use:
· Short email to MPs about Pharmac funding using this template here.
· Short email to Pharmac about the need for daratumumab using this template here .
· Longer letter to everyone – This template here can be used to write to everyone above. It is a longer letter which you need to edit to suit your situation. You can copy and paste it into an email if you would like.
It is absolutely vital that Pharmac hear how desperately we need daratumumab funded before they make a decision towards the end of the year, so if you are short on time/energy then please just send the short email to Pharmac.
Contact details are in each template.
Thank you so much for your support
Myeloma NZ Trustees
This is also downloadable here
Myeloma funding in New Zealand – the urgent need for daratumumab and other treatments
No new treatments have been funded in New Zealand for eight years. We desperately need new funded treatments.
Our Pharmac submission
Key points on the myeloma landscape in New Zealand: