Help us advocate for better myeloma treatment.
Keep us living campaign
Myeloma NZ has made a submission to Pharmac, which can be found here, urgently calling for modern treatments for myeloma, and we need your help. It’s 8 years since a new myeloma medicine was funded here, leaving us way behind the rest of the world. Below are some of the main points about why we need better treatments. But to help explain how desperate our situation is and to make a compelling case, we need your stories. They can be as short or as long as you like, signed or anonymous. Please see more details on this under How you can help below.
The submission focuses on daratumumab for relapsed myeloma, because Pharmac is currently considering it, but we are also asking for pomalidomide, carfilzomib, elotuzumab and ixazomib for use in relapse, and for lenalidomide to be used in initial treatment instead of cyclophosphamide.
Key points on the myeloma landscape in New Zealand:
Despite all this, no new myeloma treatments have been funded in New Zealand for eight years!
Write to your MP
Writing to your MP is another way you can help us get the message across. You can write to MPs and attach a patient story or include it all in one letter. You can also request a meeting with your MP. You can find your local MP here and their contact details here.
Write to the Minister of Health – Hon Andrew Little
You can find his details here:
Phone: (04) 817 8707
Other ways to get involved
You might want to write your myeloma story to send to your MP, or others such as the media, or share on social media, to show how desperate our situation is.
Some of the things you could include are:
A template patient story is here if you prefer:
Let us know if you’d like to help in any other way.
Myeloma NZ Trustees