If you or your loved one have been diagnosed with multiple myeloma, we’re here to help you.
Myeloma New Zealand is a new organisation set up to focus specifically on multiple myeloma and to improve the lives of patients affected by it.
Around 360 New Zealanders are diagnosed with this form of blood cancer every year. We want to provide support and information to help them and their families and loved ones to understand the myeloma ‘journey’ from diagnosis to treatment. We want to help them through the milestones they may encounter along the way, and the likely options and choices they may have. But most importantly, we want to help beat this cancer by identifying and supporting strategies and research initiatives that will both improve the quality of life of those living with myeloma and extend their lives.
As a haematologist with a specialist interest in myeloma, I have long seen the need for an organisation with this mission. Our small foundation team of myself and six trustees, all voluntary, comprises people with governance, fund-raising and advocacy skills and those with first-hand experience of myeloma.
While we’re still in the process of building the organisation and developing our plans, we’re committed to making this a patient-focused, patient-driven organisation. In line with this we want to provide a forum for patients to learn from the experiences of others, post useful articles and share their own stories and insights if they wish to. As part of this approach we have set up a private Facebook group here. Please do feel free to join and contribute.
We welcome your feedback and your thoughts on how we can ensure this organisation achieves its mission.
If you or your loved one have been diagnosed with multiple myeloma, we can help you learn about treatment options and point you to services and resources to help you cope with the disease.
Ken Romeril MBChB, FRACP, FRCPA
Myeloma New Zealand
Every quarter we’ll post news and information in our myeloma newsletter. If you would like to join the community of patients and caregivers receiving this subscribe below.