The purpose of this report is to raise awareness and understanding of multiple myeloma and its treatments and outcomes among policy makers, clinicians, patients and the general public, and to report on the human, psycho-social and economic costs of this disease in New Zealand. The economic perspective of the study is societal, in that it attempts to assess as many as possible of the costs relevant to myeloma.
A summary of the Burden of Multiple Myeloma
Because of the sheer volume of material in The Burden of Multiple Myeloma, we decided to summarise it as a separate publication, with a focus on the findings of the report that can help us chart the way forward in the treatment of myeloma.
As the report demonstrates, there have been great advances in the treatment of this complex disease in recent years, seen in particular in significant increases in survival. We are committed to working constructively with the Government to find workable, affordable ways to make more of these treatments available to New Zealanders.
The patient survey carried out in conjunction with the report provides valuable, real-life insights into what it is like to live with myeloma, and lessons on what can be done to improve support and quality of life for our patients and their families. We are grateful to the patients and caregivers who completed the survey and provided their stories.